Fragile X Syndrome is a genetic condition and is the most common known cause of inherited learning disabilities. In the UK, it affects around 1 in 4000 males, as well as 1 in 6000 females.
Here you will find an introduction to fragile X. If you would like more detailed information about fragile X, including about specific issues like behaviour or educational needs, then you can download the publications. You can also get support and information from the Fragile X Society via the Family Support Workers.
SWAN offers support and information to families of children with undiagnosed genetic disorders. SWAN offers resources, newsletters and leaflets that are available to view on the website. Through SWAN families can access mutual support and information sharing. To register and become a member, there is a downloadable form on the website.
UNIQUE provides support and information to families of children and individuals with any rare chromosome disorders.